Let’s Make Sure We Keep the Promise

By Mike Hyland, President and CEO

The end of the year tends to be a busy time.  The holidays are upon us, there are seemingly endless tasks and errands, high school seniors are planning the next steps in their lives, and Old Man Winter makes his annual return.  This is also the time of year when Congress tries to wrap up business.  In 2017, that means tax reform, which we all know is an unfailingly complicated business.  In addition, this year Congress will also take up the chore of confirming (or not) a new Secretary of Health and Human Services.  With all due respect to the enormity of the work happening in Washington D.C., we should be careful to ensure we don’t leave people who need help, and those who provide that help, behind.  In other words, let’s make sure we keep the promise.

It is most important that we remember that massive change has the potential to inflict unintended consequences on various groups.  As such, our Congress has a responsibility to be sure that any legislation or action does not inadvertently harm people with disabilities or the professionals who work tirelessly to help them.  The cost of providing quality services to people is not cheap, and it’s not supposed to be.  An automobile with front and side airbags costs more than one with pillows stapled to the steering wheel because it’s safer for people, and that’s what provider agencies do: we keep people safe.  Providing supports that allow people to live vibrant lives with dignity and choice is the minimum of what we should require as a society.  And this is not just a responsibility at the national level either.  Individual states must also ensure that we don’t lose the gains we’ve made over the years.

Massachusetts is one of a number of states now moving under the auspices of managed care entities the fiscal oversight responsibilities for many of the services provided to people with disabilities   The goal of reducing redundancy through better coordination of care is appropriate and even admirable.  That goal, however, is dwarfed by the responsibility to make sure that no one who currently receives community supports is forced to make do with less. We must take great care to guard against the pitfalls experienced in states such as Texas, where many severely disabled children have seen a horrifying reduction in vital services, or Kansas, where some families have been asked to sign blank treatment plans that ultimately called for drastic cuts to supports that keep loved ones in the community.  Massachusetts has always been a compassionate leader in the provision of social services and that commitment must remain absolute in the face of any systemic changes that may take place

As politicians struggle with the need and pressure to reduce runaway costs in certain areas, they owe it to everyone who receives community based-supports to remember just what people with disabilities (and their families) were told to expect when such supports were moved out of institutions and into local communities.  They were promised that people would be safe.  That is a promise that needs to be kept.  It’s everyone’s responsibility to see that it is.

Forum with Congressman Joe Kennedy

On Monday, Venture representatives attended a Disability and Health Care Forum with Congressman Joe Kennedy hosted by the Association of Developmental Disability Providers at the Boston Marriott in Newton.  The event was attended by staff members and leadership from human service agencies, self-advocates, and family members of people with disabilities.  Kennedy shared his commitment to “recognizing the potential in every person”, regardless of their physical or intellectual disability.

Congressman Kennedy expressed his concern about the American Health Care Act and how it will affect the rights of people with intellectual disabilities, with $1.4 trillion in cuts to health care.  He shared his concerns regarding threats to social security, affordable housing, food stamps, and even Special Olympics.  He pledged his commitment to the disability community, saying that we cannot support “cuts to services that we will all likely use someday, or be used by someone we love”.  In addition to thanking attendees for their activism, he encouraged the group to continue advocating and raising their voices.  He asked advocates to contact friends and family in other states and encourage them to find one more Republican Senator to oppose the AHCA.

Recently, Congressman Kennedy addressed Congress, rebuking The American Health Care Act.  Watch the video here.

Congressman Joseph Kennedy III represents the 4th District of Massachusetts and is a member of the House Energy & Commerce Committee.  For more information, visit his web site.

Don’t Betray Innocent People

By Mike Hyland, President and CEO

Once again there is a bill in Washington that would replace the Affordable Care Act with another version of health care policies, regulations, and practices.  Obviously, this is a heated political issue and will likely remain so for many years – but the politics of it tend to obscure an important fact: the current bill, like the last failed bill, will unequivocally harm people with disabilities and the professionals who support them.  In other words, it betrays innocent people.

The proposed bill will punch holes in Medicaid funding that individual states will not be able to fill.  With cuts of almost $850 billion over the next ten years, people with disabilities and their advocates once again find themselves (for the second time in a year that is barely four months old) in danger of being left behind.  In fact, given that this is the second bill in 2017 that threatens them, it would appear that a good many people in Congress are also choosing to simply say that these people just don’t matter.  How in the world can that be okay in this country?

Medicaid is a $600 billion annual program that contains many provisions and it is probably time for the program to be evaluated in terms of efficiency and outcomes.  Nonetheless, converting it to a block grant or per capita program goes well beyond that.  It destroys safety nets and opportunities for people with disabilities and turns a blind eye to the work force that has battled for years to be recognized with appropriate pay and benefits for the valuable work they do and have always done.  Drastic reductions to Medicaid funding undeniably makes it even harder to support professionals who are already stretched too thin.  Clearly, these proposed Medicaid cuts are tantamount to Congress and the new administration telling this workforce that what they do isn’t important.  At best, the people proposing this latest bill just don’t understand what this industry does.  At worst, they just don’t care.

People with developmental disabilities rely on current levels of funding to stay safe, to remain in a community of choice, to get to work programs, and to access wellness and recreation.  It’s utterly baffling that this would be a group that politicians seem to have deemed as needing less than they get now.  We’ll ignore the reality that savings realized from service cuts to disabled people are intended to fund a tax cut for people making a million dollars a year and up.  That’s an issue to be taken up elsewhere.  What needs to be talked about is the reality that the current legislation, as written, will take away from people who essentially have the least.  People with developmental disabilities already struggle to work, to get adequate health care, to have reliable transportation, to develop social networks, and to be heard.  They also are victims of abuse and neglect at a higher rate than the general population.  So why does Washington believe that reducing programs that support them is a good idea?  No one seems willing to answer that question, particularly those who when campaigning pledged not to cut Medicaid.  The hypocrisy is staggering!

The ACA is obviously a hot button issue that will remain so for a long time to come.  It’s expensive and it is the duty of elected officials to examine it and anything else that divides so many people.  But don’t do something that harms people who are ignored far too often.  Don’t turn back the clock and wipe out years of progress on so many fronts for people with developmental disabilities.  Hey Washington – don’t betray innocent people.


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