Direct Support Professionals Week 2017

This week has been designated as National Direct Support Professional Recognition Week, and we would like to take a moment to recognize the dedication of our agency’s Direct Support Professionals.  DSPs are highly-trained, compassionate professionals who provide a vital contribution to their communities – supporting those who need assistance with essential daily needs.  The work they do allows our society’s most vulnerable members to live safe, fulfilling lives while being part of a community of their choice.

Direct Service Professionals support individuals with some of their most basic daily needs, such as preparation of meals, helping with medications, bathing, dressing, and transportation.  DSPs encourage meaningful community integration, help individuals maintain relationships with family and friends, and help identify recreational interests.  These staff members are not only daily caregivers – they assist with communication, medical care, and more.  At Venture, Direct Support Professionals are the lifeline of our agency, and we honor the work they do every day.

For more information about Direct Support Professionals Week nationwide, please visit ANCOR’s National Advocacy Campaign website.   For more information about local celebrations of Direct Support Professionals, check out The Caring Force.

Assistive Technology and Me

The following article was written by Andrew with help from the manager of his program.  Andrew lives in a Venture residence in Worcester County and wanted to share his experience with using assistive technology.

Every day, I rely on assistive technology.  I use an overhead barrier-free lift system to get out of bed in the morning.  I then use my customized wheelchair to successfully complete my morning routines before leaving for work.  To get to work, I ride in a customized van.  The van lifts me off the ground and into the van with staff assistance.   When I was younger, all of these things – getting out of bed, getting into my wheelchair, and getting into any mode of transportation – were done by people lifting me.  When people lift you, it can be really scary and sometimes I was injured.  I have not gotten injured since I started using mechanical lifts and I feel much more comfortable.

In April 2017, I wanted to begin doing some races, but wasn’t sure I would be able to.  However, I did not realize that specialized running wheelchairs are available.  The first time I saw the running chair, I was a bit nervous.  I thought, “It doesn’t look like any other chair I have ever used.”  It only has three wheels – two in the back and one in the front.

I was very lucky to meet the team of individuals who designed and built these running chairs, and they explained aerodynamics to me.  Until that moment, I had never realized the importance of science in assistive technology.

When I participate in races with the assistance of Team Hoyt New England runners, I am sitting in an aerodynamically correct position for both my physical needs and for the person who is pushing me – amazing!  Later this summer, I will be learning to sail on a sailboat that has been fitted with assistive lifts to get in and out of the boat, and a rudder that has been adapted for me to use.  I can’t wait… And I am no longer scared of trying any new assistive technology!

Is this the Final Assault on Medicaid?

By Mike Hyland, President and CEO

With the year half over already, the U.S. Senate is working furiously to pass a bill that overhauls the Affordable Care Act before Congress recesses for the July 4th holiday.  A bill written in complete secrecy by just 13 members of the 100-member Senate is finally making its way to all of the people who will ultimately vote on it next week and, like the bill passed by the House of Representatives last month, the details are alarming.

Of paramount concern is the Senate’s plan to mirror the bill passed by the House that significantly cut Medicaid over a ten-year period, while also converting it to a block grant.  It is not just an assault on Medicaid, but an unequivocal betrayal of people with developmental disabilities and the hard-working men and women who support them in the community.  With Governor Baker already asserting that this legislation will cost Massachusetts billions if enacted, the Commonwealth will find itself in a position where draconian cuts to basic supports will be inevitable.  The human service industry already struggles to hire people, and will now be gutted even further.  The funds available to increase wages will disappear.  There have been months of advocacy that have taken place to educate the White House and Congress about what these cuts will do to people with disabilities, as well as the professionals dedicated to helping them.  Both the proposed Senate and House bills represent that the people who wrote them and voted for them just don’t care.  They know that services for people with disabilities will be cut and that pay for direct care professionals will freeze. Their actions prove they truly don’t give a damn.  How did we allow our society to get here?  If there is one thing that elected officials should be able to agree upon, it is the duty to protect people with disabilities and the too-long-taken-for-granted workforce that helps them.  Instead, President Trump and leadership in the House and Senate have chosen to abandon them and dedicate dollars that currently support these groups to the most affluent in our country via a tax cut.  Perhaps worst of all, these actions come following a promise from candidates that, if elected, they would protect Medicaid and the disabled.  Obviously, it was a lie from the start.

There is still a process that these bills must go through before becoming law.  Essentially, the House and the Senate must find a way to reconcile the two bills into one and send it to the White House to be signed.  It is my hope that people will flood lawmakers like never before with phone calls and emails that decry this horrific dismissal of people in need.  We should inundate our lawmakers with the notion that people with disabilities have the right to live safely in local communities.  We must also remember the professionals who are dedicated to supporting them.  So many people have worked way too hard, for far too long, under grueling circumstances to be so blithely abandoned in favor of millionaires and stubborn ideology.  Gandhi once said, “The true measure of any society can be found in how it treats its most vulnerable members”.  If one believes this, it would seem that we are dangerously close to failing the test.

Don’t Betray Innocent People

By Mike Hyland, President and CEO

Once again there is a bill in Washington that would replace the Affordable Care Act with another version of health care policies, regulations, and practices.  Obviously, this is a heated political issue and will likely remain so for many years – but the politics of it tend to obscure an important fact: the current bill, like the last failed bill, will unequivocally harm people with disabilities and the professionals who support them.  In other words, it betrays innocent people.

The proposed bill will punch holes in Medicaid funding that individual states will not be able to fill.  With cuts of almost $850 billion over the next ten years, people with disabilities and their advocates once again find themselves (for the second time in a year that is barely four months old) in danger of being left behind.  In fact, given that this is the second bill in 2017 that threatens them, it would appear that a good many people in Congress are also choosing to simply say that these people just don’t matter.  How in the world can that be okay in this country?

Medicaid is a $600 billion annual program that contains many provisions and it is probably time for the program to be evaluated in terms of efficiency and outcomes.  Nonetheless, converting it to a block grant or per capita program goes well beyond that.  It destroys safety nets and opportunities for people with disabilities and turns a blind eye to the work force that has battled for years to be recognized with appropriate pay and benefits for the valuable work they do and have always done.  Drastic reductions to Medicaid funding undeniably makes it even harder to support professionals who are already stretched too thin.  Clearly, these proposed Medicaid cuts are tantamount to Congress and the new administration telling this workforce that what they do isn’t important.  At best, the people proposing this latest bill just don’t understand what this industry does.  At worst, they just don’t care.

People with developmental disabilities rely on current levels of funding to stay safe, to remain in a community of choice, to get to work programs, and to access wellness and recreation.  It’s utterly baffling that this would be a group that politicians seem to have deemed as needing less than they get now.  We’ll ignore the reality that savings realized from service cuts to disabled people are intended to fund a tax cut for people making a million dollars a year and up.  That’s an issue to be taken up elsewhere.  What needs to be talked about is the reality that the current legislation, as written, will take away from people who essentially have the least.  People with developmental disabilities already struggle to work, to get adequate health care, to have reliable transportation, to develop social networks, and to be heard.  They also are victims of abuse and neglect at a higher rate than the general population.  So why does Washington believe that reducing programs that support them is a good idea?  No one seems willing to answer that question, particularly those who when campaigning pledged not to cut Medicaid.  The hypocrisy is staggering!

The ACA is obviously a hot button issue that will remain so for a long time to come.  It’s expensive and it is the duty of elected officials to examine it and anything else that divides so many people.  But don’t do something that harms people who are ignored far too often.  Don’t turn back the clock and wipe out years of progress on so many fronts for people with developmental disabilities.  Hey Washington – don’t betray innocent people.

Venture’s Newest Program

Venture Community Services strives to empower individuals with disabilities by providing them with resources and support in community-based residences across Massachusetts.  Through innovative practices, expertly trained staff, and cutting-edge facilities, we provide opportunities to those we support by helping them navigate the path toward self-determination.  Staff members teach skills in most areas of daily living, including personal care, medication management, meal preparation, budgeting, safety, public transportation, emotional and physical wellness, access to community services, recreational activities, and job coaching.  Venture also offers clinical services that assist each individual in reaching their goals.

In October 2015, Venture will open a program that has been custom-built for the population it will support.  Despite the development being partially funded by state contracts, which has been a successful model for Venture in the past, there are further upgrades and additions that will improve the quality of life for residents.  Although the state contracts fund necessities like cookware, couches, and microwave, there are still many items that cannot be accommodated.  Items such as a Smart Board, Wii gaming system, sound system with headphones, basketball hoop, exercise equipment and swing can provide recreational opportunities while meeting the sensory needs of the individuals.  It is our goal to provide an environment in which these individuals will thrive.  Therefore, during the process of completing this new home, Venture will be working to secure funding from private sources that will assist in making this facility the best environment possible for these individuals.

Venture has identified four young men who will be moving into the new program and exploring their independence for the first time.  Our multidisciplinary team of medical professionals and clinicians work together with the individual, their guardians, physicians, and service coordinator to develop an individualized plan for each person based upon their unique needs and interests.  Venture is looking forward to offering these young men the opportunity to have a home they can call their own.  Like many people in their early twenties, they are eager to start their lives independently of their parents and families, begin to explore the world around them, make decisions about their own lives and discover who they are.

If you are interested in helping Venture to prepare the home for its new residents with either a monetary or in-kind donation, please contact Paige Billings at (774) 922-1135 or pbillings@venturecs.org.


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